21. OUR EXPERIENCES WITH NARCOLEPSY - Index Offers stories about experiences with symptoms, doctors, medicines and everyday life.Category Health Conditions and Diseases Sleep Disorders narcolepsy......Our experiences with narcolepsy letters from fellow narcoleptics describingtheir experiences with doctors, symptoms, family and friends. http://www.cataplexic.com/narcolepsy2.html

This site is yours just as much as it is mine and I appreciate every contribution that you make. Anytime you have anything to add, just let me know...my email box is below. Again, thanks and bless you all. - Melody Be sure and visit the Narcolepsy Message Board and Help Forum Ask/answer questions of other narcoleptics. OUR EXPERIENCES WITH NARCOLEPSY Main Page UPDATED 05-25-02 Hi, my name is Melody and I have narcolepsy. This section is for fellow narcoleptics and their families to share their stories. If you have a story you would like to share, just email me and I will post it here. If you are in need of help or information, I will post your email address (unless you request otherwise) so that others who might be able to help can contact you. Narcolepsy is a lonely disorder...we all know that... and it is always nice to find out that we are not alone. Index for "Our Experiences" Click on the page number you want to go to.

22. Narcolepsy Message Board And Help Forum A place for narcoleptics to get it off their chest or to ask/answer questions or to just commiserate. http://www.network54.com/Hide/Forum/171382

Check out the Narcolepsy Chats at: TalkAboutSleep.com (check schedule for any changes) Narcolepsy Message Board and Help Forum Message board for narcoleptics, friends and family. Ask/answer questions...or just get it off your chest. Post now! View all messages Go back Narcolepsy + cataplexy, but no SOREM? Becca on Mar 28, 2003, 8:09 PM benefits bigdog on Mar 26, 2003, 4:14 AM Newly Diagnosed and Have Questions Jane on Mar 22, 2003, 3:58 PM Re 'over life time' Marianne on Mar 25, 2003, 9:34 PM Thanks Jane on Mar 26, 2003, 4:56 AM Looking for suppot in AZ Val M. on Mar 22, 2003, 2:24 PM Support Groups Shawna on Mar 24, 2003, 12:07 PM narcolepsy and hot flashes nance on Mar 19, 2003, 6:00 AM Re: narcolepsy and hot flashes sleepykitty on Mar 19, 2003, 7:44 AM narcolepsy and hot flashes nance on Mar 19, 2003, 1:09 PM narcolepsy and hot flashes mytell on Mar 19, 2003, 7:59 AM narcolepsy and temperature nance on Mar 20, 2003, 6:24 AM Re: narcolepsy and hot flashes Gretchen on Mar 29, 2003, 8:23 AM narcolepsy and metabolism Nance on Mar 18, 2003, 11:18 AM

23. FACTS ABOUT NARCOLEPSY narcolepsy is a potentially disabling, lifelong condition estimatedto afflict about one in every 1,000 people in the United States. http://www.uic.edu/depts/cnr/facts.htm

Narcolepsy is a potentially disabling, lifelong condition estimated to afflict about one in every 1,000 people in the United States. Although it is not rare, narcolepsy is often misdiagnosed or diagnosed years after symptoms first appear. The two primary symptoms of narcolepsy are excessive daytime sleepiness and cataplexy. People with narcolepsy are unable to resist falling asleep and do so regardless of the number of hours slept the previous night. The excessive daytime sleepiness experienced by people with narcolepsy has been described as being like trying to stay awake after going 72 hours without sleep. Frequently, people with narcolepsy fall asleep at inappropriate times, for example while eating or in the middle of a conversation. Cataplexy is the sudden loss of strength in voluntary muscles triggered by intense emotions such as laughter, excitement, or anger. The cataplectic attack, which can last from several seconds to several minutes, can range from partial muscle weakness often in the face or neck to almost complete loss of muscle control in the arms and legs. (Movies illustrating a cataplectic attack can be downloaded at http://www-med.stanford.edu/school/Psychiatry/narcolepsy

24. PROVIGIL Cephalon corporate site for the company's branded version of modafinil, sold as a wakepromoting medication for treating narcolepsy. Information for U.S. patients and physicians. http://www.provigil.com

Welcome to PROVIGIL.com, please make a selection. Enter this site customized for patients interested in learning more about PROVIGIL. Enter this site customized for physicians and other healthcare practitioners. PROVIGIL is indicated to improve wakefulness in patients with excessive daytime sleepiness associated with narcolepsy. The information presented on this site is intended for U.S. residents only. Legal

25. Narcolepsy Network http://www.narcolepsynetwork.org/

26. Ohio Sleep Medicine Institute Ohio Sleep Clinic with many helpful links and a lot of information for sufferers of Restless Legs Syndrome, Periodic Limb Movement Disorder, Sleep Apnea, narcolepsy and other sleep disorders. http://www.sleepohio.com/

Our total effort is focused on improving the quality of life for those experiencing sleep disorders.

27. To Sleep, Perchance, At Night After almost 40 years of research, scientists have found the gene that causes narcolepsy in dogs and mice. The discovery could provide a way to stop humans from falling asleep at the wheel. By Kristen Philipkoski. Wired News http://www.wired.com/news/news/story/21135.html

28. LIVING WITH NARCOLEPSY 13, FOR MORE INFORMATION. 14, OTHER PUBLICATIONS AVAILABLE FROM THE NSF.What is narcolepsy? narcolepsy Top of page. Diagnosing narcolepsy. IN http://www.sleepfoundation.org/publications/livingnarcolepsy.html

Updated November 2002 CONTENTS WHAT IS NARCOLEPSY? MAJOR SYMPTOMS DIAGNOSING NARCOLEPSY TREATMENT OPTIONS ... OTHER PUBLICATIONS AVAILABLE FROM THE NSF What is narcolepsy? NARCOLEPSY IS A chronic (long-lasting) neurological (affecting the brain or nerves) disorder that involves your body's central nervous system . The central nervous system is the "highway" of nerves that carries messages from your brain to other parts of your body. For people with narcolepsy, the messages about when to sleep and when to be awake sometimes hit roadblocks or detours and arrive in the wrong place at the wrong time. This is why someone who has narcolepsy, not managed by medications, may fall asleep while eating dinner or engaged in social activities - or at times when he or she wants to be awake. Recent discoveries indicate that people with narcolepsy lack a chemical in the brain called hypocretin, which normally stimulates arousal and helps regulate sleep. They also discovered that there is a reduction in the number of Hcrt cells or neurons that secrete hypocretin. This may be due to a degenerative process or an immune response. How this occurs is unknown.

29. Narcolepsy Institute, Montefiore Medical Center, Bronx NY The narcolepsy Institute provides support services to individuals who have narcolepsy and their families Category Health Conditions and Diseases Sleep Disorders narcolepsy......narcolepsy is a neurological condition, characterized by an irresistible urge tosleep during the day, vivid dreams, cataplexy (muscular weakness with strong http://hometown.aol.com/narcolepsyinst

30. Patient Services Specialty treatment for sleep disorders from insomnia, snoring, sleep apnea, restless legs and narcolepsy. http://www.griffinhealth.org/sleepwellness.html

The Sleep Wellness Center at Griffin Hospital The Sleep Wellness Center at Griffin Hospital is a comprehensive program that brings state-of-the-art sleep medicine our community. The Sleep Wellness Center offers help for people with sleep disorders such as insomnia, sleep apnea, snoring, restless legs and narcolepsy. The Center is conveniently located on the 1st floor of Griffin Hospital and includes 3 beautifully appointed rooms complete with satin sheets and mahogany finishes where patients are studied. The Sleep Wellness Center is staffed by highly trained physicians and polysomnographists trained in state-of-the-art sleep medicine techniques. Griffin Hospital's Sleep Wellness Center has been awarded Beta Research Site designation for product design and development by Medcare Sleep Diagnostics, the Netherlands and Vermont Medical. This designation brings world class sleep medicine to the Valley and assures on-going state-of-the-art diagnostic sleep services for the future. The Beta site designation ensures that this will continue unparalleled anywhere else in the state. New equipment improvements and innovations are available to Griffin Hospital and its patients. Unlike other area laboratories, the agreement with Medcare and Vermed guarantees patients will never be subjected to old or obsolete sleep diagnostic equipment or procedures.

31. Narcolepsy Research Project - University Of Pennsylvania The narcolepsy Research Project consists of a group of clinicians and investigatorsdedicated to improving the care of narcoleptic patients. narcolepsy. http://www.nursing.upenn.edu/narcolepsy/default.htm

Narcolepsy "Imagine falling asleep while at the wheel waiting for a green light, or at work, as happened to my patients. Excessive daytime sleepiness is often the most disabling symptom of narcolepsy and the most difficult to treat. The goal of my research is to find better ways to control this symptom.." Ann E. Rogers PhD, RN Associate Professor, School of Nursing University of Pennsylvania Narcolepsy is a chronic neurological disorder characterized by excessive daytime sleepiness and sleep attacks. Other symptoms include brief episodes of muscle weakness or paralysis, dream-like images when falling asleep and disturbed sleep at night. Narcolepsy effects equal numbers of men and women and occurs in all racial groups. This sleep disorder usually develops during the late teens or early twenties and continues throughout the individual's life. Early diagnosis and appropriate medical care are critical for reducing the adverse effects of this disorder. With adequate medication and support from their teachers, employers and families, most patients can enjoy a near-normal lifestyle. Unfortunately, many patients remain undiagnosed and undertreated. The Narcolepsy Research Project consists of a group of clinicians and investigators dedicated to improving the care of narcoleptic patients. We are particularly interested in learning more about the treatment of excessive daytime sleepiness; what treatments are effective and what treatments are not effective for controlling this symptom.

32. Narcolepsy. Idiopathic Hypersomnia. Has Treatment Failed You? Treatment, care and help for narcolepsy, hypersomnia and other sleep disorders. http://www.thesleepsite.com/unrxednh.htm

NARCOLEPSY. IDIOPATHIC HYPERSOMNIA. HAS TREATMENT FAILED YOU HAVE YOU BEEN LEFT WITHOUT HELP? Narcolepsy, idiopathic hypersomnia and other causes of severe sleepiness can cause: highway crashes marital breakdown poor memory and/or confusion ... -loss of confidence and self-esteem -...and other serious complications. The risks of untreated narcolepsy and hypersomnia are high. Too high to go untreated. WHAT CAN YOU DO? -Visit the sleep center that prides itself on delivering RESULTSsustained good outcomes and effective carerather than just tests. -Visit The Sleep Site for more information on narcolepsy, idiopathic hypersomnia and other sleep disorders. Click here to discover AN IMPORTANT SOURCE OF QUALITY CARE AND SOLUTIONS ... FROM THROUGHOUT OHIO AND THE UNITED STATES! C OLUMBUS C OMMUNITY H EALTH REGIONAL SLEEP DISORDERS CENTER Where in the world do our patients come from...and why?

33. Narcolepsy Information Center Sleepyheads.org is a center of information, all you ever needed or wanted to know about this sleeping disorder. http://www.sleepyheads.org

34. Narcolepsy Research Project - University Of Pennsylvania The narcolepsy Research Project consists of a group of clinicians and investigatorsdedicated to improving the care of narcoleptic patients. http://www.nursing.upenn.edu/narcolepsy/narcolepsy.htm

What is Narcolepsy? The exact cause of narcolepsy is not known. An abnormality in the chemistry regulating sleep and wakefulness in the brain is suspected, but not proven. Both genetic and environmental factors are believed to play a role in the development of this disorder. All patients experience excessive daytime sleepiness (sleep attacks and persistent daytime drowsiness). Sleep attacks are short periods of sleep that occur many times a day, regardless of the amount or quality of sleep the night before. They are often described as irresistible and may occur with or without warning when a person is driving, working, eating, talking, or engaging in any other activity. Most patients also experience persistent daytime drowsiness. Excessive daytime sleepiness is usually the first symptom of narcolepsy and often the most difficult symptom to control. The severity of excessive daytime sleepiness varies; some patients may have many sleep attacks each day and others only one or two sleep attacks per day. Cataplexy refers to sudden, brief episodes of muscle weakness or paralysis triggered by strong emotions such anger, laughter, surprise or anticipation. Just as nighttime REM (rapid eye movement) sleep is normally accompanied by skeletal muscle paralysis and strong emotions (dreaming); an intense emotion during the waking period can trigger instantaneous muscle weakness or paralysis. Although unable to move, the person remains conscious. For some people, any strong emotion may trigger cataplexy, while others react to only certain specific emotions. Although most patients experience cataplexy, some patients never develop this symptom.

35. Azalea Sleep Center - Tyler, Texas - Sleep Disorders Clinic Medical help for sleep disorders including snoring, apnea, restless legs syndrome, insomnia and narcolepsy. http://www.azaleasleepcenter.com/

Mission Azalea Sleep Center is dedicated to providing exceptional and effective evaluation education , and treatment of sleep disorders to physicians and patients of East Texas Vision Azalea Sleep Center leads the East Texas Area in personal treatment for sleep disorders , decreasing associated complications and improving quality of life. Azalea Sleep Center is an independent, freestanding sleep center headed by J. David Johnson, MD, FCCP . We are different from hospital sleep labs in that we offer a homelike setting and convenient check-in. When you arrive at our center, you are shown to your bedroom immediately with no waiting time in the admitting department. Our center is also unique in that we are not only a diagnostic laboratory but offer pre-testing consultation , follow-up, and arrange treatment for the patient in a timely manner. We can save the primary care physician staff time and offer the patient specialized care If a patient is interested in seeking care regarding a sleep disorder , the first step is to call our office. We can assist you in pursuing the appropriate referral chain for your particular insurance plan.

36. Living With Narcolepsy A place for people to help each other with chat, message board Conditions and Diseases Sleep Disorders narcolepsy......Living with narcolepsy And All of Its Strange Manifestations IncludingCataplexy, Sleep Paralysis, Automatic Behavior, and Other Symptoms. http://communities.msn.com/LivingwithNarcolepsy

MSN Home My MSN Hotmail Search ... Money Groups Living with Narcolepsy LivingwithNarcolepsy@groups.msn.com Groups Home My Groups Language Help ... Tools Living with Narcolepsy And All of Its Strange Manifestations Including Cataplexy, Sleep Paralysis, Automatic Behavior, and Other Symptoms. Hopefully We Will Be Able to Help Each Other. Please let me know what you are looking for and I will try to help as much as possible. Feel free to ask anything, narcolepsy has many manifestations you may not be aware of. You are not alone. Let's Talk Announcements Recommendations E-mail all members ... Join this group Notice: Microsoft has no responsibility for the content featured in this Group. Click here for more info. MSN - More Useful Everyday MSN Home My MSN ... GetNetWise

37. CENTER FOR NARCOLEPSY The Stanford University Sleep Clinic was the first medical clinic established to specialize in sleep disorders. http://www-med.stanford.edu/school/Psychiatry/narcolepsy/index.html

Narcolepsy is a serious medical disorder and a key to understanding other sleep disorders Narcolepsy is a disabling illness affecting more than 1 in 2,000 Americans. Most individuals with the disorder are not diagnosed and are thus not treated. The disease is principally characterized by a permanent and overwhelming feeling of sleepiness and fatigue. Other symptoms involve abnormalities of dreaming sleep, such as dream-like hallucinations and finding oneself physically weak or paralyzed for a few seconds (see Symptoms). The Stanford University Sleep Clinic was the first medical clinic ever established to specialize in sleep disorders. It was founded in the early 1970s by Dr. William Dement to diagnose and treat narcoleptic patients. The Stanford Center for Narcolepsy was established in the 1980s and is now directed by Drs. Emmanuel Mignot and Seiji Nishino. The Center for Narcolepsy is part of the Department of Psychiatry and Behavioral Sciences and has published more than 100 articles on narcolepsy. It is the world leader in narcolepsy research. Several hundred patients with the disorder are currently treated at the Center or participate in various research protocols. Other research protocols are conducted in animals models of narcolespy. The Stanford Center for narcolepsy was the first to report that narcolepsy-cataplexy is caused by hypocretin (orexin) abnormalities in both animal models and humans (see Research). We are always looking for volunteers in our narcolepsy research studies.

38. Scottish National Sleep Centre Sleep apnoea/hypopnoea syndrome (SAHS), narcolepsy, and periodic limb movement syndrome (PLMS). Royal Infirmary of Edinburgh. http://www.show.scot.nhs.uk/sleep/index.htm

This page is the Homepage of the Scottish National Sleep Centre which provides the national sleep laboratory service for Scotland. The site contains information about the research carried out by the lab as well as information on sleep disorders such as Sleep Apnoea/Hypopnoea Syndrome (SAHS), PLMS and Narcolepsy. Information on treatment of these conditions e.g. CPAP (Continuous Positive Airway Pressure) for SAHS is also given. By the way, if you are seeing this text it is because the browser you are using doesn't support frames - you can link to the a version of which doesn't use them by clicking here. The following text is included for indexing purposes and will normally be invisible on most browsers Lynx excluded so apologies if you can see it. Sleep Apnoea, Apnea, Hypopnea, Periodic Limb Movement Syndrome, Uuvulopalatopharngyoplasty, Sleep Laboratory, day-time sleepiness.

39. Florida Narcolepsy Association Welcome to the Florida narcolepsy Association PleaseClick Here to be directed to our official site. http://www.geocities.com/HotSprings/8627/

Welcome to the Florida Narcolepsy Association Please Click Here to be directed to our official site. Sign My Guestbook Read My Guestbook [Guestbook by theGuestbook.com

40. Sleep Disorders - Neurologychannel From the NeurologyChannel information about sleep and the different stages, insomnia, obstructive sleep apnea and narcolepsy. http://www.neurologychannel.com/sleepdisorders/

Home Search SiteMap Ask the Dr. ... Medical Store SLEEP DISORDERS Overview Causes Diagnosis Treatment CONDITIONS ADHD ALS Alzheimer's Disease Autism ... Carpal Tunnel Syndrome Cephalic Disorders Cerebral Palsy Charcot-Marie-Tooth Disease Dementia Encephalitis Epilepsy Essential Tremor ... Guillain-Barre Syndrome Headache Huntington's Disease Hydrocephalus Lou Gehrig's Disease ... Traumatic Brain Injury Vertigo TREATMENT OPTIONS Botulinum Toxin Therapy Epidural Injection Trigger Point Injection Vagus Nerve Stimulation RESOURCES Clinical Trials Links Videos ABOUT US Healthcommunities.com Pressroom Testimonial Overview Sleep is essential for the normal, healthy functioning of the human body. It also is a complicated physiological phenomenon that scientists do not fully understand. According to the National Institute of Neurological Disorders and Stroke, about 40 million Americans suffer each year from some sort of chronic, long-term sleep disorder, and another 20 million people suffer occasional sleeping problems. There are more than 70 different sleep disorders that are generally classified into one of three categories: lack of sleep, or

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